GDS Policy Overview

NIH expects the broad and responsible sharing of human as well as non-human genomic data resulting from NIH-funded research because the timely sharing of research results can accelerate discoveries that improve our ability to diagnose, treat, and prevent disease.

Other data sharing policies may also apply to your research.
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To comply with the GDS policy, NIH expects that investigators and institutions:

  • Develop and provide a plan for sharing genomic data
  • Provide an Institutional Certification form before the notice of award, if working with human data
  • Share genomic data in a timely manner to an appropriate repository
  • Responsibly use controlled-access data
  • Appropriately cite controlled-access data in publications and presentations

Individual NIH Institutes, Centers, or Offices may have additional expectations (see GDS Policy Expectations by NIH Institute & Center).

Select each step below to learn more.

BEFORE SUBMITTING GENOMIC DATA

The NIH GDS policy applies to all studies generating large scale genomic data and some smaller scale projects too. Familiarize yourself with NIH’s requirements for genomic data sharing, and the steps you have to take before sharing.

SUBMITTING GENOMIC DATA

The GDS policy requires the sharing of genomic data generated with NIH funds. Learn where you can submit genomic data, and what steps are involved in the submission process.

ACCESSING GENOMIC DATA

NIH has some of the world’s largest biomedical data repositories. Discover what data is available, how to access the data, and what you must do to protect the data you download.