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New Data Management and Sharing Policy: January 25, 2023. Learn More.
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  • Data Management and Sharing Policy
    • About Data Management & Sharing Policies
      • Data Management & Sharing Policy Overview
      • Research Covered Under the Data Management & Sharing Policy
    • Planning & Budgeting for Data Management and Sharing
      • Writing a Data Management & Sharing Plan
      • Budgeting for Data Management & Sharing
    • Data Management
    • Sharing Scientific Data
      • Data Sharing Approaches
      • Selecting a Data Repository
      • Repositories for Sharing Scientific Data
    • Protecting Participant Privacy When Sharing Scientific Data
      • Principles and Best Practices for Protecting Participant Privacy
      • Designating Scientific Data for Controlled Access
      • Considerations for Obtaining Informed Consent
      • Considerations for Researchers Working with AI/AN Communities
  • Genomic Data Sharing Policy
    • About Genomic Data Sharing
      • Genomic Data Sharing Policy Overview
      • Does the Genomic Data Sharing Policy Apply to My Research?
      • Genomic Data Sharing Expectations by NIH Institute & Center
    • Developing Genomic Data Sharing Plans
    • Institutional Certifications
      • About Institutional Certifications
      • Completing an Institutional Certification Form
    • Submitting Genomic Data
      • Data Submission and Release Expectations
      • Where to Submit Genomic Data
      • How to Register and Submit A Study in dbGaP
  • Other Sharing Policies
    • Model Organism Sharing Policy
    • Research Tools Policy
    • NIH Institute and Center Data Sharing Policies
    • Which Policies Apply to My Research?
    • Intramural Human Data Sharing Policy (Staff Only)
    • Clinical Trial Dissemination Policy
    • Public Access Policy
  • Accessing Data
    • Accessing Scientific Data
    • Accessing Genomic Data
      • Accessing Genomic Data from NIH Repositories
      • How to Request and Access Datasets from dbGaP
      • Using Genomic Data Responsibly
  • About
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Genomic Data Sharing Policy

Genomic research advances our understanding of factors that influence health and disease. To facilitate the translation of research results into applications that improve human health, NIH expects institutions and researchers to broadly and responsibly share genomic data generated by NIH funds. 

About Genomic Data Sharing

Learn about NIH's GDS policy, how it applies to your research, and any addition expectations from NIH Institutes and Centers.

Developing Genomic Data Sharing Plans

Genomic Data Sharing (GDS) plans describe how the research will meet the expectations of NIH's GDS policy. Learn how to write and submit a GDS plan.

Institutional Certifications

Investigators working with large-scale human genomic data are required to submit an Institutional Certification to NIH. Learn about this important document and how to prepare it.

Submitting Genomic Data

Learn more about the genomic data submission process, from choosing an appropriate repository to submitting datasets. Generating human genomic data? Follow our step-by-step instructions for registering a study in the Database of Genotypes and Phenotypes (dbGaP), which is required for human genomic datasets.  

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