NIH Grants and Funding
Learn about NIH’s expectations for: users of controlled-access data; NIH-supported repositories that store controlled-access data; and NIH systems that provide access to controlled-access data.
NIH has updated its security standards in the NIH Security Best Practices for Controlled-Access Data Subject to the NIH Genomic Data Sharing (GDS) Policy for Approved Users of controlled-access data under the GDS Policy. Effective on January 25, 2025, adherence to the updated security standards in the NIH Security Best Practices for Users of Controlled-Access Data will be included in new or renewed Data Use Certifications or similar agreements. Users approved prior to January 25, 2025, should secure data according to the NIH Security Best Practices for Controlled-Access Data Subject to the NIH Genomic Data Sharing (GDS) Policy until project close-out or renewal.
Additionally, NIH controlled-access data repositories in scope of the Guide Notice will be expected to secure data according to the NIH Security Best Practices for Controlled-Access Data Repositories.
Browse through this list of controlled-access repositories that will implement the NIH Security Best Practices for Controlled-Access Data Repositories. These repositories will also implement the NIH Security Best Practices for Users of Controlled-Access Data for their users. This list will be periodically updated.
Controlled-access repositories implementing NIH Security Best Practices
|
Repository |
Access System |
URL |
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Database of Genotypes and Phenotypes (dbGaP) |
dbGaP Access System |
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BioData Catalyst |
dbGaP Access System |
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The NHGRI Genomic Data Science Analysis, Visualization, and Informatics Lab-Space (AnVIL) |
dbGaP Access System |
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National Cancer Institute (NCI) Genomic Data Commons |
dbGaP Access System |
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Cancer Data Service (CDS)-Trusted Partner |
dbGaP Access System |
|
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Kids First Data Resource |
dbGaP Access System |
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INvestigation of Co-occurring conditions across the Lifespan to Understand Down syndromE (INCLUDE) Data Hub |
dbGaP Access System |
https://portal.includedcc.org/login?redirect_path=/dashboard |
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Restricted Portion of Sequence Read Archive (SRA) |
dbGaP Access System |
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National Institute of Mental Health Data Archive (NDA) |
NDA Access System |
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NDA: National Institute on Alcohol Abuse and Alcoholism Data Archive (NIAAADA) |
NDA Access System |
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Adolescent Brain Cognitive Development Study (ABCD) |
NDA Access System |
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The Neuroscience Multi-omic Data Archive Brain/NeMo |
NDA Access System |
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The CommonMind Consortium Knowledge Portal |
NDA & Synapse Access Systems |
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PsychENCODE Knowledge Portal |
NDA & Synapse Access Systems |
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National Institute on Aging (NIA) Genetics of Alzheimer's Disease Data Storage Site (NIAGADS) |
NIAGADS Access System |
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Accelerating Medicines Partnership® Parkinson's Disease (AMP® PD) |
AMP® PD Access System |
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Parkinson’s Disease Biomarkers Program Data Management Resource (PDBP DMR) |
PDBP DMR Access System |
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PEGS: Personalized Environment and Genes Study |
PEGS Access System |
https://www.niehs.nih.gov/research/atniehs/labs/crb/studies/pegs |
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NIMH Repository and Genomics Resources (NRGR) |
NRGRAccess System |
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NIDCR FaceBase |
FaceBase Access System |
For additional information, please see Implementation Update for Data Management and Access Practices Under the Genomic Data Sharing Policy (NOT-OD-24-157).