Learning

Federal Demonstration Partnership (FDP) Data Management and Sharing (DMS) Town Hall #2
July 17, 2023

NIH is collaborating with the Federal Demonstration Partnership (FDP) on a Data Management and Sharing (DMS) pilot. As part of Phase 1 of the pilot, which tested standardized DMS Plan templates including new web-based DMPTool templates to support generation of compliant plans, applicants and participating recipient institutions are invited to participate in this listening session between the FDP and the NIH staff. The goal is to provide an opportunity for feedback on the DMS plan templates currently being tested.

• Video
• Transcript
• Resource Slide Deck

Federal Demonstration Partnership (FDP) Data Management and Sharing (DMS) Town Hall #1
May 31, 2023

NIH is collaborating with the Federal Demonstration Partnership (FDP) on a Data Management and Sharing (DMS) pilot. As part of Phase 1 of the pilot, which tested standardized DMS Plan templates including new web-based DMPTool templates to support generation of compliant plans, applicants and participating recipient institutions were invited to participate in this listening session between the FDP and the NIH staff. The goal was to provide an opportunity for feedback on the DMS plan templates currently being tested.

• Video
• Transcript
• Resource Slide Deck

Conversations with NIH

Webinar Series - Part I

Understanding the New NIH Data Management and Sharing (DMS) Policy

August 11, 2022

HOSTED WITH:

The Department of Health
and Human Services

Webinar I: Understanding the New NIH Data Management and Sharing (DMS) Policy
August 11, 2022

In this webinar, we covered the basics of understanding the policy. We discussed DMS policy expectations, the applicability of the policy, how to prepare a Data Management and Sharing Plan, and considerations for sharing data responsibly.

• Video
• Resource Slide Deck

Featured Highlights

10:32 -- What does this policy apply to? 10:38 -- What does the policy require? 16:45 -- Are there acceptable reasons for limiting sharing? 21:37 -- What are the elements of a DMS Plan? 26:29 -- How will Plans be submitted? 29:01 -- Where do I share my data? 33:18 -- What will NIH Pay for? 37:36 -- How will Plans be evaluated? What will peer reviewers see/review?

Conversations with NIH

Webinar Series - Part II

Diving Deeper into the new NIH Data Management and Sharing Policy

September 22, 2022

HOSTED WITH:

The Department of Health
and Human Services

Webinar II: Diving Deeper into the new NIH Data Management and Sharing Policy
September 22, 2022

In this webinar, we took a deeper dive into the details of the DMS Policy including information such as considerations for privacy protections for sharing human participant data, working with American Indian and Alaska Native communities, how the DMS Policy interacts with the Genomic Data Sharing Policy, and more!

• Video
• Resource Slide Deck

Featured Highlights

09:05 -- Protecting Privacy When Sharing Data From Human Participants 19:21 -- Responsible Management & Sharing of American Indian and Alaska Native Participant Data 25:38 -- Interaction Between DMS and GDS Policies 32:42 -- Proprietary Considerations & Intellectual Property 36:23 -- Review of DMS Plans & Proposed Limitations on Sharing 38:31 -- Timeline for Data Sharing 40:40 --Use of Existing Data & Secondary Data Analysis 42:57 -- Research Activities Subject to DMS Policy

Data Management & Sharing Policy Overview - August 2023

Updated

A review of the nuts and bolts of the Data Management and Sharing Policy

Web Page

Genomic Data Sharing Policy Overview

The GDS policy provides expectations for the submission and access of large scale genomic data. Use this policy overview to walk through policy expectations at each phase of the research process.

Web Page

Data Management & Sharing Policy Overview

Under the DMS policy, NIH expects investigators and institutions to: 1) Plan and budget for the managing and sharing of data, 2) Submit a DMS plan for review when applying for funding, and 3) Comply with the approved DMS plan.  Use this policy overview to understand each of these expectations.

Download the simplified version of this page (PDF)

PDF Download

The Who, What Where and When of the NIH Data Management and Sharing (DMS) Policy

New

Get the basics about the DMS Policy in this handy 1-pager outlining when the policy goes into effect, what the policy requires, who needs to comply, and where data can be shared.

PDF Download

NIH Data Sharing Policy Comparison

Updated

Understand the key differences between the 2003 Data Sharing Policy and the NEW Data Management and Sharing (DMS) Policy, effective for due dates on/after January 25, 2023